Sunday, December 2, 2012
December 2, 2012 - WTF?!
I read today that the American Psychiatric Association has decided to drop the diagnosis of Asperger's Syndrome Disorder from their diagnostic guide. I have serious concerns about this as it relates to the treatment that will be available to my daughter, how our insurance will react to this news and most importantly at this point how this will affect my daughter educationally.
I obviously just learned of this change and will need to find out more about it to fully assess how it will affect us - but I wonder how many Aspies this board spoke to before making this decision.
I've posted the full article found on NBC News.
More to come on this subject.
Remember - DIFFERENT IS BEAUTIFUL!
Tuesday, September 25, 2012
September 1, 2011 - A Female Perspective
I've posted an article titled "Diagnosis and All That Jazz...A Female Perspective on Autism." It's a great account of diagnosis and what that means from the perspective of a 20-year old recently diagnosed.
Thursday, September 1, 2011
September 1, 2011 - Here We Go Again!
I haven't been writing recently, mostly because things have been pretty mellow - and you know how life has a way of running over the best layed plans. However, I have a feeling that things are about to get very noteworthy! My daughter is starting high school. I can't believe how fast the time has gone by since her diagnosis and how much things have changed. Although somethings, sadly, remain the same.
To catch up - my daughter successfully graduated from the 8th grade. It was all very traditional, except for the rhinestone spider headband that she wore. She wore a beautiful dress, and her look was all her - she curled her hair, which was blue at the time, wore a corsage - and looked all-around beautiful. She even attended the after ceremony celebration, which consisted of a dinner and dance aboard a river boat. Granted, by evening's end she was completely through with the experience. But she did it and she allowed herself to have the experience.
Following graduation, she left for a two-week vacation without me or her sisters, which I think was difficult, but rewarding at the same time. She was uncomfortable and had some tears, but worked through it and was glad that she went.
Now for school - we had our first Aspie moment of the school year (which hasn't even officially started) at the Freshman orientation. There's a new booster shot that's required of all 7-12th graders, and my daughter hasn't had it. She's extremely needle phobic - so when we stepped into the clinic set up at the school, things didn't exactly go well. I thought that if she could see other kids getting the shot, she would be more receptive to it. Not the case - she went a little ape shit - excuse my language. There was no way, short of restraining her that it was going to happen. The administrators gave her a waiver for the shot and we got her schedule - thank goodness! However, once we had her schedule, I realized that the school had put her in a special education class because of her IEP. This was Wednesday of last week. I called her couselor on Thursday and sent him a detailed email explaining that my daughter had never been in a special education class, and didn't need the class. In addition, she had no social studies or foreign language in her schedule. I didn't hear back from him, so called again the next day. The following Monday he emailed me to let me know that I needed to speak with the vice principal, so I started calling him immediately. I called him everyday and sent him emails until finally giving up and going into his office to speak with him in person today. I'm sure that he was a bit surprised to see me there - but I know how to play this game now and it's better for him to get to know me early on. He was kind enough to pull my daughter from the special ed class and put her in art instead - though he reminded me several times how difficult it was because of the size of the school and the limitations on teachers. Yeah, yeah - whatever!
So, here we go again - another school year, and another hurdle, otherwise known as a vice principal to jump. I'll keep you posted on our progress (whether that's forward or backward).
REMEMBER - Different is beautiful!
To catch up - my daughter successfully graduated from the 8th grade. It was all very traditional, except for the rhinestone spider headband that she wore. She wore a beautiful dress, and her look was all her - she curled her hair, which was blue at the time, wore a corsage - and looked all-around beautiful. She even attended the after ceremony celebration, which consisted of a dinner and dance aboard a river boat. Granted, by evening's end she was completely through with the experience. But she did it and she allowed herself to have the experience.
Following graduation, she left for a two-week vacation without me or her sisters, which I think was difficult, but rewarding at the same time. She was uncomfortable and had some tears, but worked through it and was glad that she went.
Now for school - we had our first Aspie moment of the school year (which hasn't even officially started) at the Freshman orientation. There's a new booster shot that's required of all 7-12th graders, and my daughter hasn't had it. She's extremely needle phobic - so when we stepped into the clinic set up at the school, things didn't exactly go well. I thought that if she could see other kids getting the shot, she would be more receptive to it. Not the case - she went a little ape shit - excuse my language. There was no way, short of restraining her that it was going to happen. The administrators gave her a waiver for the shot and we got her schedule - thank goodness! However, once we had her schedule, I realized that the school had put her in a special education class because of her IEP. This was Wednesday of last week. I called her couselor on Thursday and sent him a detailed email explaining that my daughter had never been in a special education class, and didn't need the class. In addition, she had no social studies or foreign language in her schedule. I didn't hear back from him, so called again the next day. The following Monday he emailed me to let me know that I needed to speak with the vice principal, so I started calling him immediately. I called him everyday and sent him emails until finally giving up and going into his office to speak with him in person today. I'm sure that he was a bit surprised to see me there - but I know how to play this game now and it's better for him to get to know me early on. He was kind enough to pull my daughter from the special ed class and put her in art instead - though he reminded me several times how difficult it was because of the size of the school and the limitations on teachers. Yeah, yeah - whatever!
So, here we go again - another school year, and another hurdle, otherwise known as a vice principal to jump. I'll keep you posted on our progress (whether that's forward or backward).
REMEMBER - Different is beautiful!
September 1, 2011
I've added a link to an article titled "Diagnosis and All That Jazz...A Female Perspective on Autism." It's a fabulous article from the first hand experiences of a twenty-year old recently diagnosed Aspie.
Wednesday, August 24, 2011
August 24, 2011 - Sacramento Bee Article
I've added a link to an article in the Sacramento Bee yesterday titled "Asperger's: Into Young Adulthood." Great article that will sound very familiar to a lot of you. I felt like I could have written it about my daughter. Enjoy and share.
Friday, May 13, 2011
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